Seoul National University Hospital shares the results and vision of Lee Kun-hee's project to overcome childhood cancer and rare diseases
Oct 21, 2024
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On the 21st, the Seoul National University Hospital Children's Cancer and Rare Disease Support Project Group successfully held the "Open Hope, Open the Future" event at CJ Hall of Seoul National University Children's Hospital. This event was designed to reflect on the achievements of the project to overcome childhood cancer and rare diseases, which began with the donation of late Chairman Lee Kun-hee in 2021, and to continue the strong project in the future. It was a meaningful time for everyone's dedication to overcome childhood cancer and rare diseases to instill hope in patients.
The event was attended by key figures such as lawmaker Kim Yong-tae, former director of the Lium Museum Hong Ra-hee, chairman of Samsung Electronics Lee Jae-yong, Seoul National University Hospital Director Kim Young-tae, and business director Choi Eun-hwa.
Lee Kun-hee's project to overcome childhood cancer and rare diseases is a 10-year mid- to long-term project that supports treatment and research of patients with childhood cancer and rare diseases. In this field, where the development of treatments is difficult due to various diseases and small number of patients, patients, especially outside the metropolitan area, are at a disadvantage in medical access. To solve this problem, the project group has been continuously promoting the expansion of medical infrastructure nationwide and strengthening cooperation with local hospitals.
Currently, the project group is focusing on completing the first phase of the foundation and deriving specific treatment outcomes in the second phase. The project is largely divided into three categories. First, 150 billion won has been allocated to the pediatric cancer project to build a treatment and research infrastructure to improve the cure rate. Second, 60 billion won is being invested for projects to build a pediatric rare disease diagnosis network and a high-tech treatment platform. Third, 90 billion won is allocated for joint research that conducts national network-based cohort research.
Through this project, a total of 9521 pediatric cancer and rare disease patients were diagnosed from 2021 to the present, and 3892 were treated. In addition, 24,608 cohort data have been registered, and 202 medical institutions across the country and 1504 medical staff are working together to provide optimal treatment for children.
The event consisted of various programs to celebrate these achievements and share future visions. The screened 'Together we are strong' video impressed the participants with the journey of patients overcoming childhood cancer and rare diseases. The dreams and hopes of patients and the efforts of dedicated medical staff became a reminder of the value of business and the importance of donation.
In the ensuing 'Hope Story' talk session, patients and medical staff talked about the process of overcoming illness and developing dreams and improving the medical environment, strengthening their hopes for a better future.
In addition, in the exhibition 'SNUH Amusement Park', pictures and messages of support drawn by children treated at Seoul National University Children's Hospital were displayed to convey the children's dreams and hopes to the participants. Not only children supported by the project group, but also other children participated in the exhibition, drawing sympathy from many people with support for a bright future.
An official who attended the event said, "This event was beyond just treatment and support, and it was an opportunity to confirm that children and their families are together in their dream future." I could feel that the goal of improving access to healthcare through cooperation with the nationwide healthcare network is gradually being realized," he said.
Choi Eun-hwa, head of the Children's Cancer and Rare Diseases Support Project (Director of Pediatric Care at Seoul National University Hospital), said "Our project group continues to strive to provide better diagnosis and treatment opportunities for children suffering from childhood cancer and rare diseases."This business will play an important role in delivering hope not only to the present but also to future generations."
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bellho@sportschosun.com
